Comments on: What is Frontotemporal Dementia?

By: Changing Perspective is Key to Easier Living with Dementia : Holly Eburne

Changing Perspective is Key to Easier Living with Dementia : Holly Eburne — Sun, 16 May 2010 14:29:38 +0000

[...] growth. I never imagined that my husband, Dave, would be diagnosed with a form of dementia (Frontotemporal) at the young age of 57. I also never imagined that my life would be richer because of this [...]

By: Learning to Live in Harmony with Frontotemporal Dementia : Holly Eburne

Learning to Live in Harmony with Frontotemporal Dementia : Holly Eburne — Tue, 15 Dec 2009 14:27:55 +0000

[...] my husband, Dave was diagnosed with Frontotemporal dementia 3 years ago, this book is another reminder of one of the biggest lessons I am learning…accepting [...]

By: What about the Children of Families with Dementia? : Holly Eburne

What about the Children of Families with Dementia? : Holly Eburne — Tue, 13 Oct 2009 13:49:34 +0000

[...] A voice telling me to share what I am learning as I journey along this road with my husband and his dementia. I am surprised at the impact writing has had on my life. Besides releasing deeply buried emotions, [...]

By: Why is my husband doing well with his dementia? : Holly Eburne

Why is my husband doing well with his dementia? : Holly Eburne — Sat, 19 Sep 2009 21:12:44 +0000

[...] is almost 3 years since the doctor told us that Dave, my husband, has Frontotemporal Dementia. Almost every day I meet someone who asks how Dave is doing. Besides the fact he is [...]

By: Running is my Saving Grace for Living with Dementia « Hollyeburne's Blog

Running is my Saving Grace for Living with Dementia « Hollyeburne's Blog — Mon, 13 Jul 2009 01:16:20 +0000

[...] @ 2:26 pm Tags: dementia, frontotemporal dementia, Overcoming Dementia Since my husband, Dave, 59, was diagnosed with Frontotemporal dementia 2 years ago, our lives have changed dramatically. I [...]

By: hollyeburne

hollyeburne — Tue, 07 Jul 2009 03:50:23 +0000

Hi Deedee,
I read some of your posts and commented on one of them. I can feel your pain because my Mom passed away at 60 from cancer and the hole in my life was huge when she died. Like you, I was grateful for the time to say good-bye.
It sounds like your Mom is at a tough stage and I know that will be coming for us in the next couple of years. I keep focusing on today and let tomorrow comes when it does.
Warmly,
Holly

By: deedee

deedee — Tue, 07 Jul 2009 02:52:08 +0000

I am okay…my blog is very private in that I haven’t shown it to my family and friends. Just my sister. I don’t believe my own brother has ever seen it. I just have such sad entries and alot of my anger about the disease has been chronicled in the entries. Not a very uplifting blog, but I write in it if anything to help others who are going through it understand the ups and downs. http://www.irenetdjftd.blogspot.com

By: hollyeburne

hollyeburne — Sat, 04 Jul 2009 21:36:32 +0000

Thank you Peter. I was successful and I am filling in my profile.

Warmly

Holly

By: Peter Moore

Peter Moore — Sat, 04 Jul 2009 20:52:48 +0000

Hi Holly,

It is possible that someone else has the same username! Please keep trying, if you have more problems, let me know, and I will assist,

FAQ’s on the forum should also help.

Regards,

Peter

By: hollyeburne

hollyeburne — Sat, 04 Jul 2009 19:27:11 +0000

Hi Peter,

Thank you for commenting on my blog and also for sending along the link to join the supportforum. It is comforting to be in touch with other caregivers since FTD isn’t well known in our area and there seems to be little support for caregivers.

I tried to register with my name but they kept telling me that my username was invalid. Any other suggestions? I will try again in a few minutes because it will help to be with other people in similar situations. As soon as I am successful, then I have a couple of people that I want to forward this on to.

How is your wife doing and how are you managing?

Warmly, Holly