Comments on: Learning to Live in Harmony with Frontotemporal Dementia http://hollyeburne.com/alzheimers-and-related-dementia/learning-to-live-in-harmony-with-frontotemporal-dementia/ Enriching Lives, One Step at a Time Mon, 23 Jan 2012 18:18:44 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Holly http://hollyeburne.com/alzheimers-and-related-dementia/learning-to-live-in-harmony-with-frontotemporal-dementia/comment-page-1/#comment-88 Holly Fri, 18 Dec 2009 02:51:12 +0000 http://hollyeburne.com/?p=545#comment-88 Hi Barb, Thank you for your response to my blog. I am thrilled to learn of the project you are involved in. 3 years ago I didn't know anything about FTD or that dementia can affect people as young as 20. My passion and purpose is raising the awareness of FTD by sharing the experiences and lessons I am learning as a caregiver. Every day there are surprises--it keeps me on my toes. Very sorry to hear about your Mom. How wonderful that she has a daughter like you. Warmly, Holly Hi Barb,

Thank you for your response to my blog. I am thrilled to learn of the project you are involved in. 3 years ago I didn’t know anything about FTD or that dementia can affect people as young as 20. My passion and purpose is raising the awareness of FTD by sharing the experiences and lessons I am learning as a caregiver. Every day there are surprises–it keeps me on my toes.

Very sorry to hear about your Mom. How wonderful that she has a daughter like you.

Warmly,
Holly

]]> By: Barb Steen http://hollyeburne.com/alzheimers-and-related-dementia/learning-to-live-in-harmony-with-frontotemporal-dementia/comment-page-1/#comment-87 Barb Steen Fri, 18 Dec 2009 02:31:38 +0000 http://hollyeburne.com/?p=545#comment-87 Hi Holly, I came across your website while searching for suggestions of how to manage my mom's(progressive non-fluent FTD)resistance to getting into her bed at night. My mom is 79 and was diagnosed in 2003 but we had noticed small changes early then that. I had attended a presentation regarding a new initiative assiting in the diagnosis of memory problems for rural residents in Saskatchewan. This "Rural and Remote Memory clinic" brings together a number of health professionals( neurologist, psychologists, physiotherapists, dietician and clinical nurse specialist) at the Royal University Hospital in Saskatoon Saskatchewan. The initial assessment is a full day with each health professional participating, the follow up is done alternatly by telehealth in home communities and trips back to Saskatoon. Last September I was inivited to participate in a research study involving a support group for caregivers of family members with atypical dementias (ie non alzheimers)We meet once a month at the local hospital over telehealth, facilitated by two psychologists from the memory clinic. Our 7 members are from 6 different communities across the provinice(6 of which are caring for family members with FTD). It has been a great supportive and learning forum. We met today and I was very excitied to tell them about your website so I am sure a number of them will be checking out your site. Barb Hi Holly,
I came across your website while searching for suggestions of how to manage my mom’s(progressive non-fluent FTD)resistance to getting into her bed at night. My mom is 79 and was diagnosed in 2003 but we had noticed small changes early then that. I had attended a presentation regarding a new initiative assiting in the diagnosis of memory problems for rural residents in Saskatchewan. This “Rural and Remote Memory clinic” brings together a number of health professionals( neurologist, psychologists, physiotherapists, dietician and clinical nurse specialist) at the Royal University Hospital in Saskatoon Saskatchewan. The initial assessment is a full day with each health professional participating, the follow up is done alternatly by telehealth in home communities and trips back to Saskatoon. Last September I was inivited to participate in a research study involving a support group for caregivers of family members with atypical dementias (ie non alzheimers)We meet once a month at the local hospital over telehealth, facilitated by two psychologists from the memory clinic. Our 7 members are from 6 different communities across the provinice(6 of which are caring for family members with FTD). It has been a great supportive and learning forum. We met today and I was very excitied to tell them about your website so I am sure a number of them will be checking out your site. Barb

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