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The Tipping Point–the moment I knew that I couldn’t ignore the signs of dementia

July 18, 2009 by  

I was sitting in our den this morning thinking about the warning signs or red flags that told me something was wrong with Dave’s brain.

The very first sign happened about 6 years ago with Tabasco sauce. I wanted Dave to pick up some Tabasco sauce at the grocery store and he looked at me like he had never heard of it. Even describing the little bottle-with the red cap and hot, spicy flavor used in our favourite chicken wing recipe, didn’t fire any memories.  I quickly let it go, and said I would pick it up later. The next time, a little ‘inside’ voice told me that something wasn’t right happened a year later when Dave couldn’t find a street, which was  only a block away from our old neighbourhood, where we lived for 10 years. 

Without realizing that my subconscious already knew what was going on, I was buying Sudoku puzzles, Nintendo DS Brain Age games-one for Dave and one for me, stacking my library with brain books by Dr. Amen, Dr. Doidge and others. I was limiting our TV watching-especially the news and violent shows-setting aside daily reading times, exercising on a regular basis, changing our diet to include omega-3 rich foods, such as wild salmon, avocados and consuming gingko supplements. The list goes on, but I don’t want to bore you. I was doing this for at least 3 years before Dave was officially diagnosed with Frontotemporal dementia. .

Even though Dave was complaining of daily headaches, sleeping 11 hours/night, plus a 1-2 hour nap on his days off, experiencing moderate seizures (once a year), and not recognizing people he has worked with for 25 years, I was blaming everything on the stress of his job as a high school teacher. I believed that once he retired, the original Dave who I married 31 years ago would come back.

 The moment  I knew that I had to seek medical help-all of the brain food, nutritionals and exercises weren’t enough-was in November, 2006 while watching a Sunday afternoon football game. I was playing with our new puppy, Emma, on the floor when I heard this eerie sound. It was similar to someone who has suffered a stroke-a guttural sound. When I looked over at Dave, his face was red and wincing with tears. I asked him what was wrong. He pointed to the TV and said…”I have never seen those sparkly lights in the air before”. Those sparkly lights were fireworks.

 So that was my ‘tipping’ point, when all of the red flags of the past several years finally hit me in the face. If you are questioning whether someone in your family has Alzheimer’s or any of the associated dementias, you will know. There are subtle signs or feelings telling you, although you can’t put your finger on it; they will start as small ones that are out of character. The next step is knowing what to do about it; speaking with your family doctor may be a reasonable starting point.

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  1. deedee on Tue, 21st Jul 2009 7:27 pm 

    Hi, Holly,

    I will sit down and read all of this blog (I quickly read the most recent three, but would like to read all of it..which I will!) but wanted to reply to this post. I read your post on my blog. Thanks for keeping in touch about my Mom, and I hope to keep in touch about Dave. Red Flags for us…for me, it was when she said the word Plastic. She asked us what we should put on a couch if her boyfriend was allergic to the couch. We answered, maybe a type of plastic covering. She repeated the word plastic, “plastic, plastic, plastic, plasteeek”. Then she wrote the word down, asking us how to spell it. That was when I saw it the first time. Her boyfriend had noticed she didn’t recall the names of restaurants they had been to before. Common restaurants she would refer to as “that restaurant that starts with an S…..”. I agree that these blogs will help others coping with the same questions we once had at the beginning (and throughout as well!)

  2. hollyeburne on Tue, 21st Jul 2009 7:33 pm 

    Hi DeeDee,
    It is so great to hear back from you. I can appreciate what you are going through because I think that I told you I lost my Mom when she was 60. The hole is huge and unexplainable. There are many times when my life with dementia seems surreal, and that I can snap my fingers and my life will return to the way it was 3 years ago. It can’t, and so I use my writing to help me understand the lessons I am meant to be learning. I think my next post will be about my son, Kyle, 27, and how he is living with losing his Dad.
    Thank you again for staying in touch.
    Take care,
    Holly

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